tag:blogger.com,1999:blog-7684525930962718074.post6622775049941428745..comments2023-05-08T08:53:10.566-04:00Comments on Miss Charlie: Positive results!Shaunahttp://www.blogger.com/profile/01295902289838109583noreply@blogger.comBlogger10125tag:blogger.com,1999:blog-7684525930962718074.post-18752174142908294522010-06-11T22:40:51.713-04:002010-06-11T22:40:51.713-04:00Wow, that is great news! I was wondering if you mi...Wow, that is great news! I was wondering if you might have some contact info for your doctor I could get... I'd love to learn more about the procedure. Kylee is like a fountain too with no meds. her saltropine still works but has side effects of course. Robinul has pretty much quit working since she's been on it so long. It'd be great to have a way to control the gurgles with no meds!Adrianehttps://www.blogger.com/profile/06411467150718371127noreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-42909233680576947692010-06-11T08:48:02.837-04:002010-06-11T08:48:02.837-04:00So happy for you both - sounds like an answered pr...So happy for you both - sounds like an answered prayer!swgoatsnoreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-21749050184406898572010-06-09T23:39:27.810-04:002010-06-09T23:39:27.810-04:00Wow, what a great update! I hope that Charlie con...Wow, what a great update! I hope that Charlie continues to do so well. Sounds like surgery was a success!ANewKindOfPerfecthttps://www.blogger.com/profile/11978293330074662766noreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-69528724461465939182010-06-08T15:36:35.579-04:002010-06-08T15:36:35.579-04:00Very true Kat. It's been a couple of days and...Very true Kat. It's been a couple of days and honestly, her secretions are back up a bit. I have no idea where she's going to stabilize as far as that goes. We still suction frequently, but she's not choking and she's not drenching rags every 5 minutes. Even with the increase in secretions, she's peeing like crazy. I adjusted her feeds once, but I need to do it again. I can't imagine what that alone was putting her body through.Shaunahttps://www.blogger.com/profile/01295902289838109583noreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-31148257232421457432010-06-07T19:49:12.851-04:002010-06-07T19:49:12.851-04:00Awesome update!Awesome update!momtoSnoreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-19963884330007247062010-06-07T19:03:39.423-04:002010-06-07T19:03:39.423-04:00that's awesome! I think just the fact that sh...that's awesome! I think just the fact that she was losing so much fluid out of her mouth to dehydrate her and possibly (long term) damage her kidneys is enough reason for this to be a procedure that can be done at any major hospital in any state for kids with these issues.<br /><br />I honestly think even if all it did was that one thing, it was worth it. To hear all the other good things this procedure did for her... I'm welling up with tears of joy.Kat - Ruthie-dos.blogspot.comhttps://www.blogger.com/profile/13914685398413146599noreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-3261211404492676272010-06-07T11:31:46.185-04:002010-06-07T11:31:46.185-04:00VERY good news!!! I'm glad to hear she's d...VERY good news!!! I'm glad to hear she's doing so well! I hate that you can't hear her breathing sometimes, that's scary. It's going to be really hard to mentally adjust to that. But overall, I think the results are great and you'll both be so much better off!Sherrie Millerhttps://www.blogger.com/profile/03067541362565232497noreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-16002027285552329602010-06-06T18:50:12.486-04:002010-06-06T18:50:12.486-04:00Wonderful!! I am so glad it was a great success! S...Wonderful!! I am so glad it was a great success! She must be so much more comfortable with breathing. I hope she can go so far as to even get OFF of the O2...That would be awesome!Kristenhttps://www.blogger.com/profile/03108569992517366402noreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-65253590187563222672010-06-06T14:06:52.526-04:002010-06-06T14:06:52.526-04:00What a wonderful update on Charlie. I'm glad t...What a wonderful update on Charlie. I'm glad to hear that it was all worth it & is helping her so well.The 5 C'shttps://www.blogger.com/profile/04438754121126019050noreply@blogger.comtag:blogger.com,1999:blog-7684525930962718074.post-67461273143941508612010-06-06T11:53:24.539-04:002010-06-06T11:53:24.539-04:00awesome news!!awesome news!!Happy Froghttps://www.blogger.com/profile/09479636776466066658noreply@blogger.com