Totally respecting those who live in states where nursing is extremely limited. This is HARD! I've missed 2 med doses so far. One was klonipin on saturday...just completely forgot! So I had all the meds drawn up for yesterday and had them out on the counter so I wouldn't forget. Then I went to bed and didn't hear my alarm go off for her 2 am meds....woke up at 3:30 am with my phone in my hand and the alarm shut off. Decided to skip the klonipin and just do oxycodone and baclofen at that point. Woke up at 6:30 am and realized I grabbed the wrong syringe and I gave her klonipin instead of baclofen. *hits forehead* So I compromised and just gave her half the klonipin dose at 7.
She's having a rough day today. Secretions just pouring out her nose and mouth. Soaked her pillow, hair, clothes, and 4 prefolds by 11am. Gave her oxycodone at 11:30am....still struggling. Gave her fentynol....still struggling. Finally broke down and knocked her out with clonidine. I hate doing that but she needs to rest and BREATHE!
Managed to get some laundry done and I have banana bread baking in the oven. Not too bad. I wanted to get a little grocery shopping done today but I highly doubt that will happen now. Still haven't showered and I'm in my pj's. I'd much rather spend her naptime surfing the web than showering. *blushes*
I missed breakfast but managed to toss together a halfway decent lunch. Tuna sandwich, veggies, chips and diet dr. pepper.
So.....how exactly do people function normally with no nurse? Seriously, I was just reading that some people only get ANY nursing if their kid is vent-dependant. Glad I live in Ohio right now. Sheesh. Now just counting down the days until her nurse gets back....