We started Charlie on the Robinul and it did help a bit with her secretions. At least she wasn't blowing bubbles out her nose every 10 minutes anymore. But after about 2 days, I noticed she had more residuals than normal, which is a common side effect of Robinul...It can slow down the digestive tract. But it wasn't too bad. She wasn't puking or anything. Then 2 days later I put her to bed and 4 hours later I heard her coughing and gagging and found her *covered* in vomit. Not a little....head to toe, bed soaked, splattered the walls kind of vomit.
So I thought maybe she didn't agree with something in her blend. I got a new bag of formula instead and started it. I diluted it more than normal too, just in case. And hour later....head to toe vomit again. I turned her rate down by almost half and started her again. .....And again. She just wouldn't digest anything! So I stopped her completely, skipped her Robinul and just gave her diluted apple juice the next day until she acted hungry in the evening. I had to start her slow, but she seemed ok. After 2 full days off the Robinul, she was handling her normal rate again.
So we have to wait until her pulm appointment to see if we can try anything else.
I really don't understand how she was doing so well a few months ago and now we suction her more than when she just left the NICU. :-(